11% complete
$25,000 Goal
Jacob, now 25 years old, is the currently youngest West Virginian living with ALS. On March 16, 2022, Jacob was diagnosed with ALS. His diagnosis is a very aggressive genetic version caused by a FUS gene mutation. The life expectancy of this ALS version is 1 to 3 years, however, In May of last year, we began participation in a clinical trial at The Ohio State University, Columbus, OH. OSU is on the front lines of developing some incredible treatments which target these specific gene mutations.
We need your help!
Efforts are underway to gather sponsors for funding this year’s event, which includes a full day at the Sanderson off-road trail in Charleston, WV. Additionally, all riders will receive a custom event T-shirt with YOUR business logo printed on the back, #TeamJacobWV Wristbands, and a Unique event sticker.
Jacob is an avid outdoorsman who loves off-roading, hunting, and pretty much any activity that involves being outside! Your donation is greatly appreciated.